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a summary of current events
My husband, Jordan, has brain cancer. He’s had it for a while—at least a decade—but this time it’s not fucking around. We found the original cancer on August 23, 2013. It was a Friday, five days before our ninth anniversary—the day Jordan bought a brand new motorcycle and went out for a ride. He seemed…
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may 2
Good progress and bad news this time around. Jordan had his MRI on Sunday night, and we met with the neuro-oncologist today. We check in with the radiation oncologist on Thursday afternoon, but I’m not anticipating that she’ll have any new information for us after the appointment today. He has been doing pretty well over…
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april 5
Apologies for the length between updates! We dove right back into the routine here after the hospital, and I am just this moment realizing that I didn’t post any kind of update after we got home. I guess that explains the length of this one. Post-Hospitalization Jordan’s recovering VERY well from the embolism and associated…
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march 18
He’s being discharged today! They discontinued the eye medication, but it will take two weeks for it to be out of his system. He is coming home with a liquid anticoagulant for the two weeks that he will inject himself (or I will if he needs help) with every 12 hours. After two weeks, he’ll…
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march 17
Unfortunately, discharge won’t be today, but we’re still moving forward and things are looking positive. He’s been moved to a different, non-ICU room which is also super nice (and much quieter). He has a lovely view of the parking lot, a geometric planting of olives trees, and a better vantage point for rush hour traffic…
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march 16
Jordan remains on the mend, and we are continuing to look to tomorrow (March 17) for discharge. I just spoke with the pulmonary team and he’s healing as they hoped. He’s tolerating the medication well, his lungs and heart sound good, and he’s returning to normal energy levels. PT will be here later today to…
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march 15
Quick update! He’s recovering very well, and he’s transitioning from ICU care to regular hospital patient care this afternoon. He will still physically remain in the ICU until a bed is available (which may not happen, as a county we are low on hospital beds), but his official status is changing for the better. They…
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march 14
tl;dr: Jordan was hospitalized with a pulmonary embolism (blood clots in his lungs) last night after a lengthy wait in the ER. Last week Jordan did his first round of maintenance chemo Sunday through Thursday nights – a double dose of the medication that left him feeling exhausted and generally crummy. He’s also been feeling…
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march 1
As many are aware, we had the first MRI post-treatment on Friday, and the follow up with the neuro-oncologist’s team yesterday. The MRI shows that there is no tumor growth, and some shrinkage in one area. Unfortunately, that has not translated into improvement of symptoms for Jordan. He’s still struggling a little bit more every…
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february 7
Last day of radiation! Here’s Jordan ringing the bell, with a daring and just-in-time save by filmmaker Lou when Jordan celebrates a little too fully. After he got home, I took the radiation mask out to the garage to compare it with the one from 2014, and they’re kind of different! He wrapped up his…