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august 10
Celebration of Life Update Categories for the competitive potluck have been announced! Potluck Categories Something Weird Jordan couldn’t stop himself from ordering the weirdest thing on the menu. Bring out your weird ingredients, the recipe no one has heard of, or the bizarre presentation. Something Spicy Jordan was renowned for over-spicing his meals, whether it…
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july 17
Celebration of Life information is live! You can view all the current information and RSVP at unicornfancy.com/jordan. We’re putting together a pretty great party that will include a whole lamb, adult beverages, a competitive potluck, and a huge array of amazing people. If you’d like to help out, I’ve added a spot on the RSVP…
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july 10
Thank you so much for the love and support I’ve gotten over the last almost-week. I’m doing ok. Horrible, but ok. I’ve had friends or family stop by every day to make sure I’m fed or to help me kick cancer out of this house. I’m eating full meals, I’m keeping up with my gym…
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july 4
Jordan passed peacefully this afternoon at home on our porch, surrounded in love. He dressed in his brown tracksuit (a Christmas gift from me), a t-shirt from our road trip last summer, his brown felt hat (his Christmas gift from me in 2013), his graduation ring (also from me), and his favorite watch. He wanted…
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june 20
Jordan continues to experience minor increases in his most recent symptoms (vision, hearing, left side sensation) as time passes. He’ll have a few days of stability per-symptom, but they are each slowly increasing in severity. He’s also started to develop a tremble in the right hand. He’s still heading to the Challenge Center Tuesdays and…
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june 8
Things have been busy, but largely stable over the last week(ish). We said goodbye to Bruiser last Thursday, here at home. It was a very peaceful transition, and his last day was filled with adoration and culinary delights (donuts, cheese, Aurora’s breakfast, etc.). I posted some (many) photos on the public part of the blog…
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may 29
Lots to share since my last update (much of it bad news), so I’ll start with the nicer stuff. Jordan took the new chemo on May 9th, and chased it with his first visit to the Challenge Center (the accelerated PT program we’ve been waiting to get into) the next day. He tolerated the new…
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may 2
Good progress and bad news this time around. Jordan had his MRI on Sunday night, and we met with the neuro-oncologist today. We check in with the radiation oncologist on Thursday afternoon, but I’m not anticipating that she’ll have any new information for us after the appointment today. He has been doing pretty well over…
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april 5
Apologies for the length between updates! We dove right back into the routine here after the hospital, and I am just this moment realizing that I didn’t post any kind of update after we got home. I guess that explains the length of this one. Post-Hospitalization Jordan’s recovering VERY well from the embolism and associated…
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march 18
He’s being discharged today! They discontinued the eye medication, but it will take two weeks for it to be out of his system. He is coming home with a liquid anticoagulant for the two weeks that he will inject himself (or I will if he needs help) with every 12 hours. After two weeks, he’ll…