Unfortunately, discharge won’t be today, but we’re still moving forward and things are looking positive. He’s been moved to a different, non-ICU room which is also super nice (and much quieter). He has a lovely view of the parking lot, a geometric planting of olives trees, and a better vantage point for rush hour traffic…

Jordan remains on the mend, and we are continuing to look to tomorrow (March 17) for discharge. I just spoke with the pulmonary team and he’s healing as they hoped. He’s tolerating the medication well, his lungs and heart sound good, and he’s returning to normal energy levels. PT will be here later today to…

Quick update! He’s recovering very well, and he’s transitioning from ICU care to regular hospital patient care this afternoon. He will still physically remain in the ICU until a bed is available (which may not happen, as a county we are low on hospital beds), but his official status is changing for the better. They…

tl;dr: Jordan was hospitalized with a pulmonary embolism (blood clots in his lungs) last night after a lengthy wait in the ER. Last week Jordan did his first round of maintenance chemo Sunday through Thursday nights – a double dose of the medication that left him feeling exhausted and generally crummy. He’s also been feeling…

As many are aware, we had the first MRI post-treatment on Friday, and the follow up with the neuro-oncologist’s team yesterday. The MRI shows that there is no tumor growth, and some shrinkage in one area. Unfortunately, that has not translated into improvement of symptoms for Jordan. He’s still struggling a little bit more every…

We are halfway through radiation! Sorry for the silence – things have been very busy as we keep on the chemo/radiation schedule. Our typical days right now start at 5am when we get Jordan ready for radiation. He’s been hit pretty hard with what we’re calling “chemo hangover” that early in the morning. He struggles…

First week of treatment is underway! In the last week before the start of treatment, Jordan was having worsening symptoms daily. His vision became very limited, and shaky in one eye which makes him very unstable when he’s up and moving. His hearing has also been decreasing, leaving him unable to really comprehend anything other…

Thanks to everyone who’s reached out and helped out this week. The tech of the calendar situation isn’t quite right, but also I don’t have a better solution yet, so … maybe next week! We are definitely going to need a lot of help for the next 6+ weeks. We had a busy day at…